Don’t let chronic illness clutter your heart: organization!

What overwhelmed me on my diagnosis day wasn’t the diabetes. I have a family filled with diabetes so I was ready for it. Instead, it was the stuff. So much stuff! I felt like I was leaving a convention with swag-bags galore! I came home and put the stuff on a table and it was everywhere. Falling out of bags, no rhyme or reason, no organization, and only barely understanding what all the stuff did. It was the perfect picture for how I really felt — out of control.

Seeing all that stuff everywhere broke me.

I still can’t explain why having all those medical supplies strewn out all crazy upset me so much. Let’s be real here — I am not the tidiest person! But to this day, you can get a pretty good idea on how I feel about my diabetes based on how my diabetes supplies are organized.

The things being everywhere weighed me down. It weighed on my heart. I couldn’t keep the supplies where they belonged, let alone keep my blood sugar where it belonged!

Recently, I got my diabetes supplies back in check. I wanted to share some of the ways that keep this overwhelming “stuff” in the house from becoming overwhelming “stuff” in my heart and mind.

I got this under the bed drawer back when I was about to move out of my parents house for the first time. There were actually two but one went missing in a move. In looking at “under the bed organization” lately, the products that are out there are woefully inadequate. Most of the storage, I think, is meant for more long term storage because you’re required to pull the while drawer out just to open it up. It doesn’t matter if what you need is right at the front, you have to pull the whole thing out.

Under the bed medicine organization
Under the bed medicine organization

What I like about this is that it’s a literal drawer that I can pull in and out as needed. I keep the things I want at my fingertips in the front, and the things that aren’t so important in the back. I also like that it’s stackable. Our bed could have two layers, though I know some people’s beds can’t.

But it’s not quite as simple as “get a drawer.” If you were to just throw all your stuff inside the drawer, things would go crazy very quickly. From here, I just used the boxes that my supplies came in (supplemented with Amazon Prime boxes cause we’re straight-up-Amazon-addicts), cut them so that they are shallow enough for the drawer, and used that to separate the supplies from each other.

By doing this, all my supplies are under my control. They sit where I want them to sit. They become my tools, instead of my overloads.

Pump preventative action — save your settings!

Glooko saved my insulin pump settings and saved me so much hassle too!
Glooko saved my insulin pump settings and saved me so much hassle too!

Save your pump settings! When my pump was declared dead by Insulet, the first thing I did was call my endocrinologist. He said he was sending me in a script for Lantus and to take the same amount of Lantus as my total daily basal rate was on my pump.

Well, how much was that?

I certainly wouldn’t have known save for the fact that just a few days earlier, I had gotten curious about glooko. Being stubbornly nosey about technology, I dug up my Omnipod cord that I hadn’t used in years, and got my data synced into Glooko. I don’t really like the Glooko interface (I prefer to use my xDrip+ setup), but it saved me immeasurable stress and drama when my pump died. I would have had to start completely over figuring out my basal and bolus rates. Years of work tweaking those down the drain!

It’s easy to forget that your insulin pump can break, too. Remember to save your settings to make it easier on you if something goes wrong!

I wont say it’s easy typing all these settings back into the omnipod now that the new one has arrived, but it’s a million times easier than starting from scratch.

Please save your settings! I know the CDE told me to do that right when I was diagnosed and I never did until that coincidental upload into glooko.

It’s not always about diabetes — just being sick

I woke up today and felt awful. Completely awful. I pulled the covers over my head, determined to have just “5 more minutes” without dealing with diabetes. 30 minutes later, I tested and… I was at 101!

It wasn’t diabetes making me feel sick. I was just… sick.

 

I don’t even know how to react. Tea? Soup? Rest? What are these things — I’m used to needles, water, and more needles.

It’s a nice reminder, though, that I am still a human and not solely a diabetic. Little colds are strange in that it’s as if God is telling you to slow down and focus on him. Well, with whatever focus your fuzzy-addled mind can muster.

A cheerful heart is good medicine,
    but a crushed spirit dries up the bones.
Proverbs 17:22

Just staying cheery in the storm. And following sick care rules.